Dementia Research Group

Social Prescribing for people to Live Enjoyably with Dementia In Daily life (SPLENDID). This research is funded by the NIHR. This project will talk with people with dementia, family carers and staff working in social prescribing services to understand what people want, what works well and what could be improved.

SPLENDID: Social Prescribing for people to live enjoyably with dementia/memory problems in daily life (IIRP17) | ARC East of England]

Post-Diagnostic Dementia Support within the ReCOVERY College Model: A Realist Evaluation (DiSCOVERY). This research is funded by the NIHR. The project will explore how Recovery Colleges in Mental Health services can best support people living with dementia.

Post-Diagnostic Dementia Support within the ReCOVERY College Model: A Realist Evaluation (DiSCOVERY) - NIHR Funding and Awards

The Cognitive Daisy (COG-D) for improving care of residents with dementia in care homes: A feasibility RCT. This research is funded by the NIHR. This study examines the feasibility of a new outcome measure to establish cognitive strengths and deficits in care home residents in order to personalise their care.

The Cognitive Daisy (COG-D) for improving care for residents with dementia in care homes: A feasibility RCT - NIHR Funding and Awards

MELODIC: co-developing a Music therapy intervention Embedded in the Life Of Dementia Inpatient psychiatric Care to reduce agitation and related physical assaults. This research is funded by the NIHR. The study will look at co-designing a music therapy intervention for people with dementia being cared for within mental health wards.

Researchers at Hull are part of an interdisciplinary research group which aim is to improve the care provided to people with dementia within mental health wards. The group consists of people with dementia, family carers, researchers, health care professionals and representatives from the charity Dementia UK.

We are committed to creating and supporting research which seeks to improve care and outcomes for people with dementia and their families following an admission to a mental health ward. We aim to ensure that research focuses on issues that matter to people with dementia and their families and that it involves them as experts by experience.

The group are also committed to raising public awareness about mental health admissions in dementia and to ensure that people with dementia and their families can find support and information.

To join us email e.wolverson@hull.ac.uk.

This online evidence-based course was developed in 2009 to support practitioners in treating some of the most costly aspects of dementia care.

The health (multi-morbidities/medications ) component was updated in 2018. It is aimed at staff/practitioners supporting people with dementia and their families. It is not intended for use by people with dementia or families. The term ‘challenging behaviour’ does not imply ‘misbehaviour’ that can undermine dignity in people living with dementia. It has been used to reflect the health and psychosocial need(s) of people with dementia that ‘hands-on-staff’ and family carers can have significant difficulty in responding to.

2023

Pollux, P. M., Surr, C., Cohen, J., Huang, C., Wolverson, E., Mountain, P., ... & Hudson, J. M. (2023). The Cognitive Daisy (COG-D) for improving care for residents with dementia in care homes: protocol of a feasibility RCT. Pilot and Feasibility Studies, 9(1), 1-13.

Quinn, C., Wolverson, E., & Mountain, G. (2023). Innovations in dementia and ageing care. Frontiers in rehabilitation sciences, 4, 1191633.

Wolverson, E. L., Harrison Dening, K., Dunning, R., Crowther, G., Russell, G., & Underwood, B. R. (2023). Family experiences of inpatient mental health care for people with dementia. Frontiers in Psychiatry, 14, 1093894.

Wolverson, E., Harrison Dening, K., Gower, Z., Brown, P., Cox, J., McGrath, V., ... & Prichard, J. (2023). What are the information needs of people with dementia and their family caregivers when they are admitted to a mental health ward and do current ward patient information leaflets meet their needs?. Health Expectations, 26(3), 1227-1235.

2022

Amponsem, S., Wolverson, E. and Clarke, C. (2022). The meaning and experience of hope by people living with dementia as expressed through poetry. Dementia, p.14713012221137469.

Bennett, J., Wolverson, E., & Price, E. (2022). Me, myself, and nature: living with dementia and connecting with the natural world–more than a breath of fresh air? A literature review. Dementia, 21(7), 2351-2376.

Coleston-Shields, D.M., Challis, D., Worden, A., Broome, E., Dening, T., .Boliang, G., Hoe, J. Llyod-Evans, B., Moniz-Cook, E., Morris, S., Poland, F., Prothero, D. & Orrell, M. (2022) Achieving Quality and Effectiveness in Dementia Using Crisis Teams (AQUEDUCT): a study protocol for a randomised controlled trial of a Resource Kit. Trials 23, 54

de Wolf-Linder, S., Reisinger, M., Gohles, E., Wolverson, E., Schubert, M., & Murtagh, F. E. (2022). Are nurses needs assessment methods robust enough to recognise palliative care needs in people with dementia? A scoping review. BMC nursing, 21(1), 1-28.

Dunn, R., Clayton, E., Wolverson, E. and Hilton, A. (2022). Conceptualising comorbidity and multimorbidity in dementia: A scoping review and syndemic framework. Journal of multimorbidity and comorbidity

Edmans, B.G., Wolverson, E., Dunning, R., Slann, M., Russell, G., Crowther, G., Hall, D., Yates, R., Albert, M. and Underwood, B.R. (2022), Inpatient psychiatric care for patients with dementia at four sites in the United Kingdom. Int J Geriatr Psychiatry, 37.

Mast B.T., Ertle, E.M., Kolanowski, A,. Mountain, G., Moniz Cook, E. & Halek, M. (2022) Person-centered assessment of apathy and resistance to care in people living with dementia: review of existing measures. Alzheimer's & Dementia: Translational Research & Clinical Interventions conditionally accepted

Glover, L., Wolverson, E. & Woods, C. (2022). “I am teaching them, they are teaching me”: Experiences of teaching Alexander Technique to people with dementia. European Journal of Integrative Medicine.

Mountain, G. A., Cooper, C. L., Wright, J., Walters, S. J., Lee, E., Craig, C., Berry, K., Sprange, K., Young, T., Moniz-Cook, E., Dening, T., Loban, A., Turton, E., Beresford-Dent , J., Thomas, B., Thompson, B., & Young , E. L. (2022) The Journey through Dementia psychosocial intervention versus usual care study: a two - arm, phase 3, superiority randomised controlled trial. The Lancet Healthy Longevity, 3 (4) e276-e285.

White, C., Whitfield, C., Wolverson, E. and Wray, J. (2022). Caring from a distance: carers’ experiences of keeping in touch with care home residents during COVID-19 closures. International Journal of Care and Caring, 1(aop), pp.1-23

Wolverson, E., Dunn, R., Dunning, R. & Moniz-Cook, E. (2022) Family carer perspectives on the language of behaviour change in dementia: An online mixed methods survey. Age and Ageing. Accepted 23/12/21.

Wolverson, E., Glover, L. & Clappison, D..J (2022) Self-Care for Family Carers: Can the Alexander Technique help? Complementary Therapies in Clinical Practice,46, 101546, ISSN 1744-3881.

Wolverson, E., Moniz-Cook, E., Dunn, R., & Dunning, R. (2022). Family carer perspectives on the language of behaviour change in dementia: an online mixed methods survey. Age and Ageing, 51(3), afac047.

Wolverson, E., Dunning, R., Crowther, G., Russell, G. and Underwood, B.R. (2022). The Characteristics and Outcomes of People with Dementia in Inpatient Mental Health Care: A Review. Clinical Gerontologist, pp.1-20.

Woods, C., Wolverson, E. and Glover, L. (2022). Extending understanding of ‘care’as an embodied phenomenon: Alexander Technique teacher perspectives on restoring carers to themselves. International Journal of Care and Caring, pp.1-17.

2021

Buggins, S. L., Clarke, C. & Wolverson, E. (2021). Resilience in older people living with dementia–A narrative analysis. Dementia, 20(4), 1234–1249.

Csipke, E., Shafayat, A., Sprange, K., Bradshaw, L., Montgomery, A.A., Ogollah, R., Moniz-Cook, E. & Orrell, M. (2021) Promoting Independence in Dementia (PRIDE): A Feasibility Randomized Controlled Trial. Clinical Interventions in Aging, 16, 363-378.

James, I., Duffy, F., Reichelt, K. & Moniz-Cook, E. (2021) Getting our 'Terminology' Right: The Power of Language. Journal of Dementia Care, 29(2), 27-27.

James, I., Gray, K., Moniz-Cook, E., Lee, K., Reichelt, K. and Richardson J (2021). A New Holistic Non-pharmacological Framework for Understanding and Managing Behavioural and Psychological Symptoms of Dementia. British Journal Psychiatry Advances. 28, 1, 11-20,

Pearson, M., Clarke, C. & Wolverson, E. (2021) The meaning and experience of gratitude for people living with dementia. Dementia, 21(1), 335-352.

Stanyon, M., Streater, A., Coleston-Shields, D., Yates, J., Challis, D., Dening, T., Hoe, J., Llyod -Evans, B., Mitchell, S., Moniz-Cook, E., Poland, F., Prothero, D. & Orrell, M. (2021) Protocol for the development of an evidence-based ‘Best Practice Model’ for Teams Managing Crisis in Dementia. JMIR Research Protocols, 10(1):e14781.

Sweeney, L., Clarke, C. & Wolverson, E. (2021) The use of everyday technologies to enhance wellbeing and enjoyment for people living with dementia: A systematic literature review and narrative synthesis. Dementia.

Sweeney, L., Wolverson, E. & Clarke, C. (2021) Understanding the shared experiences of creating a digital life story with individuals with dementia and their spouse. Dementia.

Vernooij-Dassen, M., Moniz-Cook, E., Verhey, F., Chattat, R., Woods, B., Meiland, F., Franco, M., Holmerova, I., Orrell, M. & de Vugt, M. (2021) Bridging the divide between biomedical and psychosocial approaches in dementia research: the 2019 INTERDEM manifesto. Aging & Mental Health, 25(2), 206-211.

Wenborn, J., O'Keeffe, A.G., Mountain, G., Moniz-Cook, E., King, M., Omar, R.Z. et al. (2021) Community Occupational Therapy for people with dementia and family carers (COTiD-UK) versus treatment as usual (Valuing Active Life in Dementia [VALID]) study: A single-blind, randomised controlled trial. PLoS Med, 18(1): e1003433.

Wolverson, E., White, C., Dunn, R., Cunnah, K., Howe, D., Platt, R., Paulson, K. & Thorpe, J. (2021) The use of a bespoke website developed for people with dementia and carers: Users' experiences, perceptions and support needs. Dementia 21(1), 94-113.

Wolverson, E., Dunn, R., Moniz-Cook, E., Gove, D. & Ponce-Diaz, A. (2021). The language of behaviour changes in dementia: A mixed methods survey exploring the perspectives of people with dementia. Journal of Advanced Nursing, 77(4), 1992-2001.

2020
Allward, C., Dunn, R., Forshaw, G., Rewston, C. & Wass, N. (2020) Mental Wellbeing in People with Dementia Following Cognitive Stimulation Therapy. Dementia, 19(2), 496-504.

Ballard, C., Orrell, M., Moniz-Cook, E., Woods, R., Whittaker, R., Corbett, A., Aarsland, D., Murray, J., Lawrence, V., Testad, I., Knapp, M., Romero, R., Zala, D., Stafford, J., Hoare, Z., Garrod, L., Yongzhong, S., McLaughlin, E., Woodward-Carlton, B., Williams, G. & Fossey, J. (2020) Improving mental health and reducing antipsychotic use in people with dementia in care homes: the WHELD research programme including two RCTs. Programme Grants for Applied Research, 8(6).

Broome, E., Coleston-Shields, D., Dening, T., Moniz-Cook, E., Poland, F., Stanyon, M. & Orrell, M. (2020) AQUEDUCT Intervention for Crisis Team Quality and Effectiveness in Dementia: Protocol for a feasibility study. JMIR Research Protocols, 9(10):e18971

Buggins, S-L., Clarke, C. & Wolverson, E . (2020) Resilience in older people living with dementia: A narrative analysis. Dementia.

Clarke, C., Woods, B., Moniz-Cook, E. , Mountain, G., Øksnebjerg, L., Chattat, R., Diaz, A., Gove, D., Vernooij-Dassen., M. & Wolverson, E . (2020) Measuring the well-being of people with dementia : a conceptual scoping review. Health & Quality of Life Outcomes, 18, 249.

Conway, L., Wolverson, E. & Clarke, C . (2020) Shared experiences of resilience amongst couples where one partner is living with dementia: A grounded theory study. Frontiers in Medicine: Geriatric Medicine 7, 219.

Csipke, E., Moniz-Cook, E., Leung, P., Yates, L., Birt, L. Walton, H., Hogervorst, E., Mountain, G., Charlesworth, G. & Orrell, M. (2020) Feasibility and acceptability evaluation of the PRIDE (Promoting Independence in Dementia) intervention for living well with dementia. International Psychogeriatrics, 1-14.

Draper, P. & Hilton, A. (2020) Dignity, well-being and identity: a qualitative study of older people's interpretations of how healthcare workers speak to them. Nursing Older People.

James, I. A., Mahesh, M., Duffy, F., Reichelt, K. & Moniz-Cook, E. (2020) UK Clinician's Views on the Use of Formulations for the Management of BPSD: A Multidisciplinary Survey. Aging & Mental Health.

James, I. A., Reichelt, K., Moniz-Cook, E. & Lee, K. (2020) Challenging Behaviour in Dementia Care: A Novel Framework for Translating Knowledge to Practice. The Cognitive Behaviour Therapist, 13, E43 

Keenan, J., Poland, F., Manthorpe, J., Hart, C. & Moniz-Cook, E. (2020) Implementing e-learning and e-tools for care home staff supporting residents with dementia and challenging behaviour: A process evaluation of the ResCare study using normalisation process theory. Dementia, 19(5), 1604 -1620.

Maidment, I., Barton, G., Campbell, N., Shaw, R., Seare N., Fox, C., Iliffe, S., Randle, E., Hilton, A., Brown, G., Barnes, N., Wilcock, J., Gillespie, S. & Damery, S. (2020) MEDREV (pharmacy-health psychology Intervention in people living with dementia with behaviour that challenges): the feasibility of measuring clinical outcomes and costs of the intervention. BMC Health Services Research, 20, 157.

Manthorpe, J. & Moniz-Cook, E.D. (eds) (2020) Timely Psychosocial Interventions in Dementia Care. Evidence -Based Practice. London: Jessica Kingsley Publishers.

Medea, B., Roberts, M., Dunn, R. & James, I. A. (2020) The Role of Models and Formulations in the Management of Behaviors that Challenge in Dementia. Open Access Journal of Gerontology & Geriatric Medicine, 5(5) DOI: 10.19080/OAJGGM.2020.05.555671

Moniz-Cook, E.D. & Rewston, C. (2020) Choosing Psychosocial Interventions for People with Dementia and their Families: Protocols for Decision-Making. In: Manthorpe, J. & Moniz-Cook, E.D. (eds) Timely Psychosocial Interventions in Dementia Care. Evidence -Based Practice. London: Jessica Kingsley Publishers, 30-47.

Moniz-Cook E.D. (2020) Remembering people with dementia during the COVID-19 crisis. HRB Open Research, 3, 15.

Ragalio, A., Gianelli, M., Moniz-Cook, E . & Manthorpe, J. (2020) Supporting People with dementia through Music. In Manthorpe, J. & Moniz-Cook, E.D. (Eds) Timely Psychosocial Interventions in Dementia Care. Evidence -Based Practice. London: Jessica Kingsley Publishers, 179 – 190.

Ulstein, I., Manthorpe, J. & Moniz-Cook, E. (2020) Supporting the Supporters: Interventions to reduce Family Distress. In Manthorpe, J. & Moniz-Cook, E.D. (Eds) Timely Psychosocial Interventions in Dementia Care. Evidence -Based Practice. London: Jessica Kingsley Publishers, 166-178.

White, C., Dunn, R., Wolverson, E. & Zafeiridi, P. (2020) The views of carers, people living with dementia and healthcare practitioners about the value of online information and peer support. International Journal of Care and Caring

Yates, J., Stanyon, M., Challis, D., Coleston-Shields, D., Dening, T., Hoe, J., Jawahar, K., Lloyd-Evans, B., Moniz-Cook, E., Poland, F., Streater, A., Trigg, E. & Orrell, M. (2020) Developing a model of best practice for teams managing crisis in people with dementia: A consensus approach. BMC Psychiatry, 20

Rosie Dunn

SPARC PhD MMB UoH Scholarship Cluster Student

'The experiences of couples living with dementia and multiple health conditions'

Catherine Wood

Death Cafes as a novel approach to increase end of life conversations for people with dementia'