Helen Roberts

Helen Roberts

Patient and Public Involvement Coordinator

Faculty and Department

  • Faculty of Health Sciences
  • Hull York Medical School

Qualifications

  • BA (University of York)
  • MA (University of Liverpool)
  • PGCert (University of Bradford)
  • PGCert (University of Leeds)

Summary

Helen joined Hull York Medical School in 2019 to coordinate patient and public involvement in the Transforming cancer outcomes in Yorkshire research programme. She supports researchers to plan for and undertake meaningful public involvement in doctoral research, developing new grant applications, and running grant funded studies. She has skills in building respectful and inclusive relationships, engaging with diverse people, writing in Plain English, creating accessible information, presenting, organising and facilitating events, budgeting for public involvement, and negotiating the emotional and practical complexity of public involvement.

She manages the Involve Hull public involvement network, which is a large, diverse group of people with personal experience as patients, carers and users of health and care services, with a particular focus on cancer and palliative care. She supports members of the network to get involved in research that matches their experiences and interests, enabling them to have a meaningful voice in shaping our health and care research.

MSc Palliative Care

Recent outputs

View more outputs

Journal Article

Erratum: Correction: Supported: Supporting, enabling, and sustaining homecare workers to deliver end-of-life care: A qualitative study protocol (PloS one (2023) 18 12 (e0291525))

Bayley, Z., Bothma, J., Bravington, A., Forward, C., Hussain, J., Manthorpe, J., Pearson, M., Roberts, H., Taylor, P., Walker, L., White, C., Wray, J., & Johnson, M. J. (2024). Erratum: Correction: Supported: Supporting, enabling, and sustaining homecare workers to deliver end-of-life care: A qualitative study protocol (PloS one (2023) 18 12 (e0291525)). PLoS ONE, 19(2), Article e0298925. https://doi.org/10.1371/journal.pone.0298925

Supported: supporting, enabling, and sustaining homecare workers to deliver end-of-life care: a qualitative study 2 protocol 3 4

Bayley, Z., Bothma, J., Bravington, A., Forward, C., Hussain, J., Manthorpe, J., Pearson, M., Roberts, H., Taylor, P., Walker, L., White, C., Wray, J., & Johnson, M. J. (2023). Supported: supporting, enabling, and sustaining homecare workers to deliver end-of-life care: a qualitative study 2 protocol 3 4. PLoS ONE, 18(12), Article e0291525. https://doi.org/10.1371/journal.pone.0291525

Bringing fictional characters to life: reflections on co-creating a comic book with members of the public

Cairns, J. M., Roberts, H., Al-Khafaji, G., & Kwater, M. (2023). Bringing fictional characters to life: reflections on co-creating a comic book with members of the public. Research Involvement and Engagement, 9(1), Article 28. https://doi.org/10.1186/s40900-023-00437-2

Reflections of experts by experience and research team members on research and development about a sensitive issue that attracts stigma

Howlett, H., Catterick, M., Onukwugha, F., Roberts, H., Dyson, J., Smith, L., & Cohen, J. (2023). Reflections of experts by experience and research team members on research and development about a sensitive issue that attracts stigma. Research for All, 7(1), https://doi.org/10.14324/RFA.07.1.02

Developing and testing the ExerciseGuide UK website for people with lung cancer: reflections on the added value of patient and public involvement within a doctoral degree

Curry, J., Roberts, H., Smith, A., Riley, D., Pearson, M., & Forbes, C. C. (2022). Developing and testing the ExerciseGuide UK website for people with lung cancer: reflections on the added value of patient and public involvement within a doctoral degree. Research Involvement and Engagement, 8(1), Article 66. https://doi.org/10.1186/s40900-022-00395-1

Research interests

Patient and public involvement and engagement in health and care research

Creative methods for research and public involvement

Health inequalities

Equity, diversity and inclusion in research and public involvement

Co-investigator

Project

Funder

Grant

Started

Status

Project

Evaluating the effectiveness and acceptability of free door to door transport to increase the uptake of breast screening appointments in Yorkshire: A cluster randomised GP pilot trial

Funder

YCR Yorkshire Cancer Research

Grant

£293,513.00

Started

1 June 2023

Status

Ongoing

Project

Supporting, enabling and sustaining home care workers to deliver end-of-life care: amultiple-methods community-based case study

Funder

NIHR National Institute for Health Research

Grant

£596,722.00

Started

1 October 2022

Status

Ongoing

Project

BREEZE 2: A randomised controlled trial of a complex intervention to manage breathlessness in pulmonary fibrosis

Funder

NIHR National Institute for Health Research

Grant

£397,551.00

Started

1 April 2024

Status

Ongoing

Project

DAMPen-D II: Improving the Detection, Assessment, Management, and Prevention of Delirium in Palliative Care Units: a cluster Randomised-Controlled Trial, Economic Analysis and Process Evaluation

Funder

NIHR National Institute for Health Research

Grant

£2,142,656.00

Started

1 October 2024

Status

Ongoing

Project

Public Involvement Funds

Funder

NIHR National Institute for Health Research

Grant

£500.00

Started

1 April 2021

Status

Complete

Project

PPI Application: The target is 45 minutes. A mixed methods evaluation of the experiences and choices of cancer patients accessing radiotherapy services.

Funder

NIHR National Institute for Health Research

Grant

£500.00

Started

1 September 2021

Status

Complete

Project

TRANSFORM: The development of a mobile phone app to capture the journey time and patient experience throughout a day in the life of cancer patient attending hospital.

Funder

YCR Yorkshire Cancer Research

Grant

£25,088.00

Started

1 October 2021

Status

Complete

Project

HIKE: Cervical SCREEN: Cervical SCReening Eastern EuropeaN

Funder

AHRC Arts & Humanities Research Council

Grant

£22,139.00

Started

1 September 2023

Status

Complete

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