Professor Miriam Johnson

Professor Miriam Johnson

Professor

Faculty and Department

  • Faculty of Health Sciences
  • Hull York Medical School

Qualifications

  • MBBS (University of Manchester)
  • MD

Summary

Miriam Johnson is Professor of Palliative Medicine at Hull York Medical School, and Associate Director of the Wolfson Palliative Care Research Centre at the University of Hull. She is Adjunct Professor of Palliative Medicine at the University Technology Sydney, Sydney, Australia.

For twenty years (2000 to 2020), she also provided consultant palliative physician services to Scarborough General Hospital and Saint Catherine's Hospice, Scarborough where she set up one of the UK’s first integrated palliative care services for people with heart failure.

Undergraduate:

Phase I Scholarship and Special Interest Programmes

Phase II Scholarship and Special Interest Programmes

Postgraduate:

MSc module: implementation science in advanced and chronic conditions

Recent outputs

View more outputs

Journal Article

Supported: supporting, enabling, and sustaining homecare workers to deliver end-of-life care: a qualitative study 2 protocol 3 4

Bayley, Z., Bothma, J., Bravington, A., Forward, C., Hussain, J., Manthorpe, J., …Johnson, M. J. (2023). Supported: supporting, enabling, and sustaining homecare workers to deliver end-of-life care: a qualitative study 2 protocol 3 4. PLoS ONE, 18(12), Article e0291525. https://doi.org/10.1371/journal.pone.0291525

The handheld fan for chronic breathlessness: Clinicians' experiences and views of implementation in clinical practice

Brown, J., Miller, I., Barnes-Harris, M., Johnson, M. J., Pearson, M., Luckett, T., & Swan, F. (2023). The handheld fan for chronic breathlessness: Clinicians' experiences and views of implementation in clinical practice. PLoS ONE, 18(11), Article e0294748. https://doi.org/10.1371/journal.pone.0294748

BREATHLEssness in INDIA (BREATHE-INDIA)–Study protocol for the co-design of a community breathlessness intervention in India using realist methods and intervention mapping

Clark, J., Salins, N., Pearson, M., Spathis, A., Currow, D. C., Williams, S., & Johnson, M. (2023). BREATHLEssness in INDIA (BREATHE-INDIA)–Study protocol for the co-design of a community breathlessness intervention in India using realist methods and intervention mapping. PLoS ONE, 18(11 November), Article e0293918. https://doi.org/10.1371/journal.pone.0293918

Views and experiences of opioid access amongst palliative care providers and public representatives in a low-resource setting: A qualitative interview study

Clark, J., Salins, N., Daniel, S., Currow, D. C., Jones, L., Pearson, M., …Johnson, M. J. (2023). Views and experiences of opioid access amongst palliative care providers and public representatives in a low-resource setting: A qualitative interview study. PLOS Global Public Health, 3(9), Article e0002401. https://doi.org/10.1371/journal.pgph.0002401

Airflow rates and breathlessness recovery from submaximal exercise in healthy adults: prospective, randomised, cross-over study

Brew, A., O'Beirne, S., Johnson, M. J., Ramsenthaler, C., Watson, P., Rubini, P. A., …Simpson, A. (in press). Airflow rates and breathlessness recovery from submaximal exercise in healthy adults: prospective, randomised, cross-over study. BMJ supportive & palliative care, https://doi.org/10.1136/spcare-2023-004309

Research interests

Miriam's research interests include:

mechanisms, management of and services for breathlessness and other neglected symptoms such as delirium;

inequalities in palliative care service provision e.g. for people with non-malignant disease such as heart failure and respiratory disease, and the use of needs assessment tools;

methods to conduct high quality palliative care research;

the social impact of advanced disease on the individual and their family and friends

Projects employ a wide range of research methodologies (clinical trials of drug or complex interventions, qualitative studies, observational, secondary data analysis, data linkage studies) and collaborative partners are involved across different disciplines and countries. She has published widely and holds grants from a variety of bodies (NIHR, NHMRC, Dunhill Medical Trust, Marie Curie Cancer Care/CRUK, Yorkshire Cancer Research, British Heart Foundation).

Lead investigator

Project

Funder

Grant

Started

Status

Project

I3: Building Critical Mass, Increasing Scale and Impact for Palliative Care through International Collaboration

Funder

Research England

Grant

£403,507.00

Started

1 August 2019

Status

Ongoing

Project

PrimaryBreathe: programme to develop and test a brief remote primary care intervention for chronic breathlessness

Funder

NIHR National Institute for Health Research

Grant

£171,920.00

Started

1 September 2022

Status

Ongoing

Project

BREATHE-INDIA: BREATHlEssness in INDIA - Development of a breathlessness beliefs and behaviour education intervention for use in the community-setting

Funder

MRC Medical Research Council

Grant

£110,912.00

Started

1 October 2022

Status

Ongoing

Project

CANAssess PC2: Cancer Needs Assessment in Primary Care

Funder

YCR Yorkshire Cancer Research

Grant

£481,344.00

Started

1 July 2019

Status

Ongoing

Project

RDSI: A randomised controlled trial to determine the clinical and cost effectiveness of a self-management intervention for the respiratory distress symptom cluster (breathlessness-cough-fatigue) in lung cancer

Funder

NIHR National Institute for Health Research

Grant

£29,547.00

Started

1 January 2017

Status

Complete

Project

CANAssess: Reducing inequalities in care for people with cancer and palliative care needs: a programme of work for cancer patients and caregivers in the community based in Yorkshire

Funder

YCR Yorkshire Cancer Research

Grant

£277,985.00

Started

1 September 2016

Status

Complete

Project

BreatheMOR: Morphine for the relief of breathlessness in stable chronic heart failure

Funder

British Heart Foundation

Grant

£299,581.00

Started

1 October 2013

Status

Complete

Project

NAT ILD: The adaption and validation of an assessment tool to identify the palliative care needs of people with irreversible idiopathic interstitial lung disease for use in every day clinical practice

Funder

CRUK Cancer Research UK

Grant

£117,454.00

Started

1 June 2014

Status

Complete

Project

HIDDEN: Hospice Inpatient Deep vein thrombosis detection study

Funder

York Health Services NHS Trust

Grant

£112,940.00

Started

27 May 2016

Status

Complete

Project

BETTER B: BETter TreatmEnts for Refractory Breathlessness

Funder

CRUK Cancer Research UK

Grant

£30,593.00

Started

1 October 2016

Status

Complete

Project

Caring together evaluation project

Funder

British Heart Foundation

Grant

£166,499.00

Started

1 December 2014

Status

Complete

Project

MABEL: A Parallel Group, Double-blind, Randomised Placebo-controlled Trial Comparing The Efficacy And Cost effectiveness

Funder

NIHR National Institute for Health Research

Grant

£731,726.00

Started

1 March 2019

Status

Complete

Project

An educational resource about palliative care needs of men with prostate cancer: supporting the patient living with prostate cancer

Funder

Prostate Cancer UK

Grant

£29,622.00

Started

1 December 2017

Status

Complete

Project

BETTER-B: BETter TreatmEnts for Refractory Breathlessness

Funder

EC European Commission

Grant

£56,859.00

Started

1 January 2019

Status

Complete

Co-investigator

Project

Funder

Grant

Started

Status

Project

Adapting a smartphone-based rehabilitation programme for older adults living with and beyond cancer: an intervention development study

Funder

NIHR National Institute for Health Research

Grant

£135,659.00

Started

1 April 2022

Status

Ongoing

Project

TRANSFORM: Improving shared decision-making in malignant bowel obstruction: An exploration of context-specific treatment pathways and experiences to inform intervention development for person-centred care

Funder

YCR Yorkshire Cancer Research

Grant

£210,701.00

Started

1 September 2021

Status

Ongoing

Project

Exploring ‘the domestic’ in contemporary hospice architecture: a critical examination of the architecture and design of in-patient palliative care facilities in England.

Funder

Wellcome Trust

Grant

£107,238.00

Started

20 September 2021

Status

Ongoing

Project

Supporting, enabling and sustaining home care workers to deliver end-of-life care: amultiple-methods community-based case study

Funder

NIHR National Institute for Health Research

Grant

£596,722.00

Started

1 October 2022

Status

Ongoing

Project

SERENITY: Towards cancer patient empowerment for optimal use of antithrombotic therapy at the end of life

Funder

UKRI UK Research and Innovation

Grant

£198,784.00

Started

1 October 2022

Status

Ongoing

Project

Health inequalities related to ethnicity and socio-economic position at the end-of-life

Funder

Academy of Medical Sciences

Grant

£29,979.00

Started

1 March 2022

Status

Ongoing

Project

FRAIL-HEART: Assessment of Frailty in Elderly People with Ischemic Heart Disease being considered for Revascularisation: An Observational study

Funder

Hull & East Riding Cardiac Trust Fund

Grant

£10,201.00

Started

1 April 2017

Status

Complete

Project

BREATHE: Breathlessness RElief AT HomE

Funder

NIHR National Institute for Health Research

Grant

£232,098.00

Started

1 April 2019

Status

Complete

Project

RESOLVE: Improving Health Status and Experience of Pain and other Symptoms for People with Advanced Cancer

Funder

YCR Yorkshire Cancer Research

Grant

£623,225.00

Started

1 June 2018

Status

Complete

Project

CS-Y Studies: Understanding and reducing inequalities for people with cancer: A programme of work based in Yorkshire

Funder

YCR Yorkshire Cancer Research

Grant

£749,827.00

Started

1 August 2013

Status

Complete

Project

TRANSFORM: Detecting, preventing, and managing delirium in specialist palliative care units: Co-design and feasibility study of a flexible and scalable implementation strategy to deliver guideline-adherent delirium care

Funder

YCR Yorkshire Cancer Research

Grant

£106,864.00

Started

15 February 2021

Status

Complete

Project

The Yorkshire & Humber Palliative Care Research Network: Addressing Inequalities Across All Ages

Funder

NIHR National Institute for Health Research

Grant

£98,332.00

Started

1 March 2022

Status

Complete

Project

Living well with chronic breathlessness: Improving the sustainable use of supported self-management strategies

Funder

NIHR National Institute for Health Research

Grant

£147,034.00

Started

1 March 2023

Status

Complete

Project

Publication Costs Award

Funder

YCR Yorkshire Cancer Research

Grant

£1,800.00

Started

11 April 2022

Status

Complete

Postgraduate supervision

Topics relate to research interests

Miriam has been primary supervisor for ten successfully awarded PhD student/fellows, and three MSc students , and co-supervisor for a further four postgraduates (five PhD ; one MPhil; one MD).

She is currently primary supervisor to two PhD fellows/students and co-supervisor to four PhD students.

Awards and prizes

Excellence in Research Award. Researcher of the Year 2017

2017

Excellence in Research Award. Researcher of the Year 2017. University of Hull

Twycross Prize for Palliative Medicine Research

1999

Awarded for my MD research

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