Journal Article
Community out-of-hours palliative care – 'It's a patchwork of services': A qualitative study exploring care provision
Firth, A. M., Goodrich, J., Gaczkowska, I., Harding, R., Murtagh, F. E., & Evans, C. J. (in press). Community out-of-hours palliative care – ‘It’s a patchwork of services’: A qualitative study exploring care provision. Palliative medicine, https://doi.org/10.1177/02692163241302671
Empowering informal caregivers and nurses to take a person-centred view: adaptation and clinical utility of the Integrated Palliative Outcome Scale (IPOS-Dem) for use in acute and community care settings
de Wolf-Linder, S., Kramer, I., Reisinger, M., Murtagh, F. E., Schubert, M., & Ramsenthaler, C. (2024). Empowering informal caregivers and nurses to take a person-centred view: adaptation and clinical utility of the Integrated Palliative Outcome Scale (IPOS-Dem) for use in acute and community care settings. BMC Geriatrics, 24(1), Article 1030. https://doi.org/10.1186/s12877-024-05608-8
End of life care in paediatric settings: UK national survey
Bedendo, A., Papworth, A., Beresford, B., Phillips, B., Vasudevan, C., Walker, G. L., Weatherly, H., Feltbower, R., Hinde, S., Hewitt, C. E., Murtagh, F., Noyes, J., Hackett, J., Hain, R., Oddie, S., Subramanian, G., Haynes, A., & Fraser, L. (online). End of life care in paediatric settings: UK national survey. BMJ Supportive & Palliative Care, Article spcare-2023-004673. https://doi.org/10.1136/spcare-2023-004673
Communicating treatment options to older patients with advanced kidney disease: a conversation analysis study
Selman, L. E., Shaw, C. B., Sowden, R., Murtagh, F. E., Tulsky, J. A., Parry, R., Caskey, F. J., & Barnes, R. K. (2024). Communicating treatment options to older patients with advanced kidney disease: a conversation analysis study. BMC Nephrology, 25(1), Article 417. https://doi.org/10.1186/s12882-024-03855-w
Preparing for responsive management versus preparing for renal dialysis in multimorbid older people with advanced chronic kidney disease (Prepare for Kidney Care): Study protocol for a randomised controlled trial.
Worthington, J., Soundy, A., Frost, J., Rooshenas, L., MacNeill, S. J., Realpe Rojas, A., Garfield, K., Liu, Y., Alloway, K., Ben-Shlomo, Y., Burns, A., Chilcot, J., Darling, J., Davies, S., Farrington, K., Gibson, A., Husbands, S., Huxtable, R., McNally, H., Murphy, E., …Caskey, F. J. (2024). Preparing for responsive management versus preparing for renal dialysis in multimorbid older people with advanced chronic kidney disease (Prepare for Kidney Care): Study protocol for a randomised controlled trial. Trials, 25(1), Article 688. https://doi.org/10.1186/s13063-024-08509-8
Research interests
Fliss is experienced in providing palliative care to a wide range of people with far advanced disease and their families, and has published extensively on palliative and end-of-life care needs, especially for older people and those with advanced kidney disease.
She is also experienced in research methods: cohort and cross sectional surveys, psychometrics, implementation and use of outcomes, especially the Integrated Palliative care (or Patient) Outcome Scale (see www.pos-pal.org).
Lead investigator
Project
Funder
Grant
Started
Status
Project
NIHR Senior Investigator Award 2019
Funder
NIHR National Institute for Health Research
Grant
£80,000.00
Started
1 April 2020
Status
Ongoing
Project
Health inequalities related to ethnicity and socio-economic position at the end-of-life
Funder
Academy of Medical Sciences
Grant
£29,979.00
Started
1 March 2022
Status
Ongoing
Project
THIS Institute PhD Fellowship application
Funder
THIS Institute
Grant
£218,116.00
Started
1 October 2023
Status
Ongoing
Project
NIHR Policy Research Unit (PRU) for Palliative and End of Life Care
Funder
NIHR National Institute for Health Research
Grant
£770,949.00
Started
1 January 2024
Status
Ongoing
Project
Co-developing an Implementation Toolkit for Palliative Care in the Intensive Care Unit
Funder
NIHR National Institute for Health Research
Grant
£475,336.00
Started
1 September 2024
Status
Ongoing
Project
DueCARE: Defining and estimating current and future Unmet palliativE CARE needs in the UK
Funder
Marie Curie Cancer Care
Grant
£0.00
Started
1 July 2024
Status
Ongoing
Project
Yorkshire & Humber ARC - 18M extension (Palliative)
Funder
NIHR National Institute for Health Research
Grant
£30,310.00
Started
1 October 2024
Status
Ongoing
Project
NIHR Senior Investigator award R17
Funder
NIHR National Institute for Health Research
Grant
£80,000.00
Started
1 April 2024
Status
Ongoing
Project
ImproveCare: The management of clinical uncertainty in end of life care – a feasibility cluster RCT
Funder
NIHR National Institute for Health Research
Grant
£7,379.00
Started
27 February 2017
Status
Complete
Project
C-Change: Delivering quality and cost-effective care across the range of complexity for those with advanced conditions in the last year of life
Funder
NIHR National Institute for Health Research
Grant
£30,615.00
Started
27 February 2017
Status
Complete
Project
RESOLVE: Improving Health Status and Experience of Pain and other Symptoms for People with Advanced Cancer
Funder
YCR Yorkshire Cancer Research
Grant
£623,225.00
Started
1 June 2018
Status
Complete
Project
PrepareME: The Prepare Multi-Morbid Older People for End-stage Kidney Disease Trial
Funder
NIHR National Institute for Health Research
Grant
£14,849.00
Started
1 January 2017
Status
Complete
Project
Understanding facilitators and barriers to inform ongoing service development of the Integrated Care Service for older frail people at the Jean Bishop Centre
Funder
NHS Hull Clinical Commissioning Group
Grant
£58,455.00
Started
1 October 2020
Status
Complete
Project
CovPall: Rapid evaluation of the COVID-19 pandemic response in palliative and end of life care: national delivery, workforce and symptom management
Funder
MRC Medical Research Council
Grant
£42,528.00
Started
20 April 2020
Status
Complete
Project
Death and dying in the UK today: improving outcomes and experiences through evidence-informed policy engagement
Funder
Marie Curie Cancer Care
Grant
£127,975.00
Started
1 January 2021
Status
Complete
Project
TRANSFORM: Development of a Palliative Care Outcomes Registry
Funder
YCR Yorkshire Cancer Research
Grant
£86,430.00
Started
1 October 2020
Status
Complete
Project
ENHANCE End of Life Care for Infants, Children and Young People: a mixed methods evaluation of current practice in the UK
Funder
NIHR National Institute for Health Research
Grant
£27,004.00
Started
1 September 2021
Status
Complete
Project
The Yorkshire & Humber Palliative Care Research Network: Addressing Inequalities Across All Ages
Funder
NIHR National Institute for Health Research
Grant
£98,332.00
Started
1 March 2022
Status
Complete
Project
PROMISE - The Potential for ROutine Data to Monitor and Reduce InequalitieS in End-of-life Care
Funder
NIHR National Institute for Health Research
Grant
£8,637.00
Started
1 April 2023
Status
Complete
Project
Improving care in the Intensive Care Unit: what works and how to put this into practice
Funder
NIHR National Institute for Health Research
Grant
£450.00
Started
1 October 2022
Status
Complete
Project
Disseminating evidence on use of outcomes in palliative care practice to improve the wellbeing of people affected by advanced illness.
Funder
Marie Curie Cancer Care
Grant
£9,865.00
Started
1 July 2023
Status
Complete
Project
Industry Fellow at Queensland University of Technology (Travelling Fellowship)
Funder
Queensland University of Technology
Grant
£3,178.00
Started
20 January 2018
Status
Complete
Project
Children's Palliative care Outcome Scale C-POS
Funder
EC European Commission
Grant
£27,022.00
Started
1 September 2018
Status
Complete
Co-investigator
Project
Funder
Grant
Started
Status
Project
I3: Building Critical Mass, Increasing Scale and Impact for Palliative Care through International Collaboration
Funder
Research England
Grant
£403,507.00
Started
1 August 2019
Status
Ongoing
Project
SERENITY: Towards cancer patient empowerment for optimal use of antithrombotic therapy at the end of life
Funder
UKRI UK Research and Innovation
Grant
£198,784.00
Started
1 October 2022
Status
Ongoing
Project
DAMPen-D II: Improving the Detection, Assessment, Management, and Prevention of Delirium in Palliative Care Units: a cluster Randomised-Controlled Trial, Economic Analysis and Process Evaluation
Funder
NIHR National Institute for Health Research
Grant
£2,142,656.00
Started
1 October 2024
Status
Ongoing
Project
North Yorkshire Health Determinants Research Collaboration
Funder
NIHR National Institute for Health Research
Grant
£989,764.00
Started
1 January 2024
Status
Ongoing
Project
Understanding barriers and facilitators to implementing physical activity interventions for patients receiving immune checkpoint inhibitor therapy: A qualitative study
Funder
Cancer Prevention and Management-ISBNPA
Grant
£1,015.00
Started
1 November 2023
Status
Ongoing
Project
RAMBO: Research Assessment Outcome Measures for Malignant Bowel Obstruction
Funder
Marie Curie Cancer Care
Grant
£85,791.00
Started
1 July 2019
Status
Complete
Project
TRANSFORM: Improving shared decision-making in malignant bowel obstruction: An exploration of context-specific treatment pathways and experiences to inform intervention development for person-centred care
Funder
YCR Yorkshire Cancer Research
Grant
£210,701.00
Started
1 September 2021
Status
Complete
Project
TRANSFORM: The development of a mobile phone app to capture the journey time and patient experience throughout a day in the life of cancer patient attending hospital.
Funder
YCR Yorkshire Cancer Research
Grant
£25,088.00
Started
1 October 2021
Status
Complete
Project
Embedding co-creation, research and action: The North Yorkshire County Council-University of Hull HDRC - QR Funds
Funder
University of Hull
Grant
£22,419.00
Started
1 September 2022
Status
Complete
Project
HEIF: QR Policy Development Fund project
Funder
University of Hull
Grant
£9,262.00
Started
1 June 2023
Status
Complete
Postgraduate supervision
Related to research interests