The CAREGIVERSPRO-MMD research project explored the use and usability of a website – the CAREGIVERSPRO-MMD website - which was designed for use by carers and people with dementia together. The website aimed to provide access to information and support, and was designed with people with dementia and their carers. Piloting of the website took place across four European sites. Training was given to help people use the website during the pilot. Hull was the UK pilot site for the project and recruited 200 dyads (people with dementia and carers).
To test the use and usability of the CAREGIVERSPRO-MMD website by people with dementia and carers.
Quantitative data collections were undertaken to explore levels and patterns of usage, and outcomes for users across a range of domains; qualitative data collection explored participant experiences of using the website, facilitators and barriers to use.
Emma Wolverson (Senior Lecturer, Ageing and Dementia)
Caroline White (Research Associate)
Katie Cunnah (Post-Doctoral Research Assistant)
Dr Emma Wolverson - E.Wolverson@hull.ac.uk
European Union Horizon 2020
Wolverson, E., White, C., Dunn, R., Cunnah, K., Howe, D., Paulson, K., Platt, R. and Thorpe, J. (2021) The use of a bespoke website developed for people with dementia and carers: Users’ experiences, perceptions and support needs. Dementia. https://doi.org/10.1177%2F14713012211028495
White, C., Dunn, R., Wolverson, E. and Zafeiridi, E. (2020). The views of carers, people living with dementia and healthcare practitioners about the value of online information and peer support. International Journal of Care and Caring.
Cunnah, K., Howe, D., Thorpe, J., Dunn, R., Platt, R., White, C., Paulson, K. and Wolverson, E. (2019). Training people with dementia/cognitive impairment and their carers in the use of web-based supportive technologies (Innovative practice). Dementia, p.147130121988759.
Howe, D., Thorpe, J., Dunn, R., White, C., Dunn, R., Cunnah, K., Platt, R., Paulson, K. and Wolverson, E. (2019). The CAREGIVERSPRO-MMD Platform as an Online Informational and Social Support Tool for People Living With Memory Problems and Their Carers: An Evaluation of User Engagement, Usability and Usefulness. Journal of Applied Gerontology. [online] Available at: https://hull-repository.worktribe.com/output/3168384 [Accessed 11 Jan. 2021].
Wolverson, E,. White, C. and Dunn, R. (2019) Technology for families of people with dementia, in “Using Technology in Dementia Care: A Guide to Technology Solutions for Everyday Living” (Eds A Astell, S Smith and P Jodrell), Jessica Kingsley Publishers
Oliva-Filipe, L., Barrue, C., Cortes, A., Wolverson, E., Antomarini, M., Landrin, I., Votis, K., Paliokas, I. and Cortes, U. (2018) Health Recommender System design in the context of CAREGIVERSPRO-MMD Project. Proceeding of PETRA ’18: The 11th PErvasive Technologies Related to Assistive Environments Conference, June, Corfu, Greece
Zafeiridi, P., Paulson, K., Dunn, R., Wolverson, E., White, C., Thorpe, J.A., Antomarini, M., Cesaroni, F., Scocchera, F., Landrin-Dutot, I., Malherbe, L., Lingiah, H., Bérard, M., Gironès, X., Quintana, M., Cortés, U., Barrué, C., Cortés, A., Paliokas, I., Votis, K. and Tzovaras, D. (2018). A Web-Based Platform for People With Memory Problems and Their Caregivers (CAREGIVERSPRO-MMD): Mixed-Methods Evaluation of Usability. JMIR Formative Research, [online] 2(1).
During the Caregiverspro research we ran regular group training sessions for people living with dementia and carers. We have used the insights from this experience to produce a guide for people facilitating training sessions in using digital technologies for people living with dementia and carers.